Wednesday, October 12, 2011

Please Pray for Little E

I would appreciate your prayers, our Little E has been diagnosed with Growth Hormone Deficiency. In the past I have written about E's small size and the delays he has encountered. He has had severe low muscle tone since he was a baby and didn't even walk until 23 months. He has been in physical therapy since age 5 months and is now in speech therapy as well. It has been a long road trying to figure out what was causing his troubles. He has seen several specialists in the past 2 years and had many, many blood tests. Finally, after only growing 1 inch this past year....they did several genetic tests as well as the GH Deficiency test. The genetic tests all came back normal (praise God), but he did fail the GH test.

Tomorrow E wil have an MRI first thing in the morning. We have to be at the hospital at 6:30am and the MRI will begin at 7:30am. He will have to be completely put under for this as they need him lying very still for almost 1 hour. They will be looking at his pituitary gland to see what it is doing. I really do not know a lot about it, but they say this will determine if he will have problems with it later on in life. At any rate, looks like we will be giving him nightly injections of Growth Hormones here soon. This would freak most people out, but we have actually been doing this for our daughter for the past 9 years (she has Turner Syndrome).

So please pray for E's safety. He has never had anesthesia before and so we do not know he will react. This always makes me nervous. Pray for his overall health and growth. Pray for us as parents to keep trusting God with our children and to not give in to fear.

Thank you,
Beth
Pin It!

14 comments:

Jaclyn Hicks said...

Praying for all of you.

Blessings.

Krafty Girl said...

My prayers go out to you.

Stay strong.

Beth :-)

Carol J. Alexander said...

Definitely, I will pray.

Shaye @ The Elliott Homestead said...

Will be praying for you, for little E, and for strength to conquer mountains. God's grace will abound!

deb c said...

You and the family are in my thoughts and prayers.

won said...

I gave my daughter six times a week GH injections. She also had many MRI's. Has anyone told you what might happen when your son begins to go under (depending on what they use)?

It's not a big deal in the grand scheme of things. It just makes a lot of kids turn into something they are not - yelling, cursing, swearing, etc. It's because of the narcotics. I just wanted you to know ahead of time, because it could be one heck of a surprise if no one gave you a heads up.

*And it may not happen at all. I'll keep you in my thoughts.

Dana said...

I will keep you all in my prayers.

Barb said...

Beth, I just said a prayer for you and your son before I posted this.

Barb

Dusty said...

Prayers from our family, for sure!

MJ @ Creative Madness Mama said...

praying

Tractor Mom said...

Praying.....

Cara said...

Praying here!

HappilyDomestic said...

Thanks for the prayers everyone. He did great! We don't have the results back yet, but at any rate all things went well. No bad reactions to the medications and he has been doing good all day (just sleepy).

Blessings,
Beth

Jessca said...

Keep your chin up, he will come through just fine!

Related Posts Plugin for WordPress, Blogger...